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Ferriprox® is being used by thousands of individuals with transfusion dependant
thalassaemia to treat iron overload. Some people have shared their experience with
thalassaemia and we invite you to read and learn more about what they have endured.
Please note: The stories are based on personal experience. They have been written by the individuals and have not been edited. The decision to use Ferriprox® is one that will be made by your physician based on your personal situation and the indication of Ferriprox® in your country.
I was born in Larissa, a beautiful city in the Greek countryside. My
childhood was calm surrounded by people who loved me and whom I
loved. People who didnt treat me differently because of who I
was. Who am I?. I was just born with Thalassaemia. From the
first years of my life I learnt to live with it. I was spending
several hours in a hospital and I became accustomed to living with
that. I never felt different. I was never treated in a different way
and none ever made me feel uncomfortable. The most difficult thing
was to accept and love myself. Having loved myself it was easier for
others to love me too. Besides, I only had to go to the hospital
sometimes
it wasnt a tragedy after all...and I could skip
school for a reason.
All my friends know who I am. I have never kept it a secret. Why
keep it a secret anyway? I have never felt different.
All these years I never experienced medical problems. The biggest
concern had always been iron chelation. The daily use of the pump (7
times a week) for 8 hours daily wasnt a pleasant experience. I
was just hoping that some day an effective but less painful way
would be discovered to cover my iron chelation needs. And then it
happened. My physician informed me that Ferriprox® was marketed. I am
using it for 3 years and the needle nightmare is only limited to
receiving blood transfusions. My life has become much easier. I can
stay up late at night without having to think that when I go back I
have to use the pump. I always carry my Ferriprox® in my purse. This
way I never have to miss any dose. Not only has Ferriprox® managed to
control my iron overload, it does it with no pain at all. And this
is what I call salvation.
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